{"id":8271,"date":"2021-05-27T12:15:10","date_gmt":"2021-05-27T16:15:10","guid":{"rendered":"https:\/\/web.uri.edu\/ssirep\/?p=8271"},"modified":"2021-06-10T16:07:57","modified_gmt":"2021-06-10T20:07:57","slug":"pace-ri-family-caregiver-survey-development","status":"publish","type":"post","link":"https:\/\/web.uri.edu\/ssirep\/pace-ri-family-caregiver-survey-development\/","title":{"rendered":"PACE RI Family Caregiver Survey Development"},"content":{"rendered":"<p><strong>Primary Investigator<\/strong>: Dr. Skye Leedahl, Associate Professor of Human Development &amp; Family Studies and Political Science<\/p>\n<div id='gallery-1' class='gallery galleryid-8271 gallery-columns-3 gallery-size-thumbnail'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/web.uri.edu\/ssirep\/policy-lab\/skye_leedahlsized\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/Skye_Leedahlsized-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" aria-describedby=\"gallery-1-5412\" srcset=\"https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/Skye_Leedahlsized-150x150.jpg 150w, https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/Skye_Leedahlsized-300x300.jpg 300w, https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/Skye_Leedahlsized-364x364.jpg 364w, https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/Skye_Leedahlsized-500x500.jpg 500w, https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/Skye_Leedahlsized-e1580107058110.jpg 200w\" sizes=\"auto, (max-width: 150px) 100vw, 150px\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-5412'>\n\t\t\t\tDr. Skye Leedahl\n\t\t\t\t<\/figcaption><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/web.uri.edu\/ssirep\/policy-lab\/olczak\/'><img loading=\"lazy\" decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/olczak-e1622131788231-150x150.png\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" aria-describedby=\"gallery-1-8262\" srcset=\"https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/olczak-e1622131788231-150x150.png 150w, https:\/\/web.uri.edu\/ssirep\/wp-content\/uploads\/sites\/1611\/olczak-e1622131788231-300x300.png 300w\" sizes=\"auto, (max-width: 150px) 100vw, 150px\" \/><\/a>\n\t\t\t<\/div>\n\t\t\t\t<figcaption class='wp-caption-text gallery-caption' id='gallery-1-8262'>\n\t\t\t\tIsabella Olczak\n\t\t\t\t<\/figcaption><\/figure>\n\t\t<\/div>\n\n<p><strong>In brief: <\/strong>Dr. Leedahl&#8217;s Public Policy Lab team researched and designed a caregiver survey for the PACE Organization of Rhode Island (PACE RI), a non-profit community-based healthcare and insurance provider for adults 55 or older with complex medical conditions who prefer to live at home. The survey will allow PACE RI to assess and improve the support it provides to its clients&#8217; caregivers. Led by Dr. Leedahl, students Madeline Green, Isabella Olczak, Sarah Robitaille, and Elizabeth Lubera conducted research and incorporated input from meetings with PACE RI administrators and social workers in order to design the survey. The team&#8217;s work will also inform survey redevelopment for the URI Cyber-Seniors program.<!--more--><\/p>\n<h3>SSIREP Researchers Design Survey to Improve Healthcare Non-Profit&#8217;s Support for the Caregivers of Older Adults<\/h3>\n<p><em>Thanks to a gift from a donor, URI\u2019s Social Science Institute for Research, Education, and Policy (SSIREP) created the Public Policy Lab, where faculty and students partner with local governments and nonprofit organizations to improve community services and better the lives of Rhode Islanders through applied policy projects. Whereas students must often work low wage jobs to complete their education, this fund creates opportunities for them to conduct paid research fellowships under the mentorship of a faculty supervisor. At the Public Policy Lab, students apply their studies toward the development of graduate-level professional skills while working as part of a team to contribute meaningfully to their community.<\/em><\/p>\n<p>At SSIREP\u2019s Public Policy Lab, a project team&#8211;led by Dr. Skye Leedahl (Department of Human Development and Family Science), with students Madeline Green, Isabella Olczak, Sarah Robitaille, and Elizabeth Lubera&#8211;researched and designed a caregiver survey for the PACE Organization of Rhode Island (PACE RI). The survey will allow PACE to assess and improve the support it provides to its clients\u2019 caregivers. PACE RI is a non-profit community-based healthcare and insurance provider for adults 55 or older with complex medical conditions who prefer to live at home.<\/p>\n<p>\u201cWe had done some work with a couple of my classes where we helped to analyze PACE RI\u2019s client satisfaction data,\u201d said Dr. Leedahl. \u201cOne of the gaps they identified was that the caregivers don\u2019t have a mechanism to weigh in on satisfaction or provide ideas for how to improve their services&#8230;And we couldn\u2019t find a lot of caregiver satisfaction surveys in the literature.\u201d<\/p>\n<p>\u201cWe went from literally nothing,\u201d Madeline Green,&nbsp; a URI senior majoring in Psychology and Human Development and Family Studies, said. \u201cIt was pretty cool starting something from scratch. It gave me a challenge to push myself more. But I was really intimidated at first. I went from zero research experience to hours on Google Scholar, researching different scales, figuring out how to even begin to measure [caregiver] satisfaction. I remember a day we found one paper that was perfect, and that was like this huge celebration.\u201d Green said.<\/p>\n<p>Leedahl\u2019s survey design team drew upon input from meetings with administrators and social workers at PACE RI.<\/p>\n<p>\u201cFieldwork is the best way to learn and grow and understand how things actually function,\u201d said Isabella Olczak, who graduated last spring. \u201cThere\u2019s so much uncertainty around the inner workings of healthcare, and this experience helped me to learn about what it really looks like in action.\u201d<\/p>\n<p>Though the survey awaits finalization, among the students the project has already borne fruit.<\/p>\n<p>\u201cPeople making policy don\u2019t always seem to know how it plays out on the ground&#8211;what works, who gets covered, who doesn\u2019t,\u201d Olczak said. \u201cI\u2019m in law school now. If I decide to do public policy, I\u2019ve had that experience, and I know.\u201d<\/p>\n<p>Green noted that,&nbsp; \u201cI was at a meeting with the social workers, and the head of the social work department was like, \u2018Thank you so much for what you\u2019re doing. We\u2019re swamped as it is, and this is crucial to our program and how we\u2019ll move forward.\u2019 And I remember thinking: all this behind the scenes research and all the stuff that I was doing on my laptop was gonna end up really benefiting them and the people involved in it too. So yeah, that was a little self-esteem boost.\u201d<\/p>\n<p>Although PACE-RI awaits implementation of the survey, the students were able to create a useful tool that was developed using current research and staff input. Future results from the survey will inform PACE-RI\u2019s service offerings and evaluate the organizations ability to meet caregiver\u2019s needs. Allowing caregivers an opportunity to provide feedback will continue to be important as PACE grows and shifts to meet the needs of an aging population.<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Primary Investigator: Dr. Skye Leedahl, Associate Professor of Human Development &amp; Family Studies and Political Science In brief: Dr. Leedahl&#8217;s Public Policy Lab team researched and designed a caregiver survey for the PACE Organization of Rhode Island (PACE RI), a non-profit community-based healthcare and insurance provider for adults 55 or older with complex medical conditions [&hellip;]<\/p>\n","protected":false},"author":3974,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[49],"tags":[],"class_list":["post-8271","post","type-post","status-publish","format-standard","hentry","category-ppl-completed-featured"],"acf":[],"_links":{"self":[{"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/posts\/8271","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/users\/3974"}],"replies":[{"embeddable":true,"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/comments?post=8271"}],"version-history":[{"count":4,"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/posts\/8271\/revisions"}],"predecessor-version":[{"id":8519,"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/posts\/8271\/revisions\/8519"}],"wp:attachment":[{"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/media?parent=8271"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/categories?post=8271"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/web.uri.edu\/ssirep\/wp-json\/wp\/v2\/tags?post=8271"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}