{"id":25741,"date":"2025-04-28T10:08:43","date_gmt":"2025-04-28T14:08:43","guid":{"rendered":"https:\/\/web.uri.edu\/tickencounter\/?p=25741"},"modified":"2025-04-30T12:33:19","modified_gmt":"2025-04-30T16:33:19","slug":"survey-tick-experiences-and-alpha-gal-syndrome-awareness-across-new-england","status":"publish","type":"post","link":"https:\/\/web.uri.edu\/tickencounter\/uncategorized\/survey-tick-experiences-and-alpha-gal-syndrome-awareness-across-new-england\/","title":{"rendered":"Survey of Tick and Alpha-Gal Syndrome Awareness: What do folks have to say?"},"content":{"rendered":"<div class=\"wp-block-image\">\n<figure class=\"alignleft is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"1024\" src=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud.jpg\" alt=\"\" class=\"wp-image-25774\" style=\"width:399px;height:auto\" srcset=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud.jpg 1024w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud-300x300.jpg 300w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud-150x150.jpg 150w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud-768x768.jpg 768w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud-364x364.jpg 364w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud-500x500.jpg 500w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/AGSwordcloud-1000x1000.jpg 1000w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption class=\"wp-element-caption\">A word cloud of the words used by respondents during our survey. The larger the word the more frequently it was used overall. Created with: WordCloud.com<\/figcaption><\/figure>\n<\/div>\n\n\n<p><sup><em>By Valerie MacDonald (April 2025)<\/em> <\/sup><br>Valerie MacDonald, a senior in the Honors Program at the University of Rhode Island, lead a research project in collaboration with Dr. Thomas Mather and his team to explore public awareness of Alpha-Gal Syndrome (AGS) and the growing presence of lone star ticks in southern New England. As part of this effort, students were surveyed to learn more about their personal experiences with ticks, their understanding of AGS, and the preventive steps they take (or don\u2019t take) when it comes to tick exposure. This blog post highlights some of the key findings from those conversations\u2014and what they reveal about how prepared people are for the changing tick landscape in our region.<\/p>\n\n\n\n<p>Many participants had firsthand tick experiences, often involving <a href=\"https:\/\/web.uri.edu\/tickencounter\/species\/blacklegged-tick\/\"><strong>blacklegged ticks<\/strong><\/a>, <a href=\"https:\/\/web.uri.edu\/tickencounter\/species\/dog-tick\/\"><strong>American dog ticks<\/strong><\/a>, or <a href=\"https:\/\/web.uri.edu\/tickencounter\/species\/lone-star-tick\/\"><strong>lone star ticks<\/strong><\/a> found in wooded areas, yards, or on pets. Some reported serious outcomes like Lyme disease or Babesiosis. AGS awareness was low\u2014only 37% had heard of it\u2014but those affected described severe, life-altering symptoms and diet restrictions. Even participants unfamiliar with AGS expressed concern, noting a red meat allergy would significantly impact their lives, especially due to cultural or nutritional reasons. While some took precautions, many did not, assuming treatment would be easy. The findings highlight a clear need for improved public education on tick-borne diseases beyond Lyme, especially as our climate continues to change along with our tick exposure. <\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Survey Results Broken Down<\/strong><\/h2>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Tick Experience<\/strong><\/h3>\n\n\n\n<p>Overall 85% of people interviewed eat red-meat to some degree but more than half had never heard of Alpha-Gal Syndrome (AGS). Additionally 55% of students had personal experience with being bitten by a tick and shared their tick stories with us. <\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\">\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"850\" height=\"480\" src=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Family-Portrait-Lone-Star.jpg\" alt=\"Lone star tick larva, nymph, adult male and adult female\" class=\"wp-image-16975\" srcset=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Family-Portrait-Lone-Star.jpg 850w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Family-Portrait-Lone-Star-300x169.jpg 300w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Family-Portrait-Lone-Star-768x434.jpg 768w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Family-Portrait-Lone-Star-364x206.jpg 364w, https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Family-Portrait-Lone-Star-500x282.jpg 500w\" sizes=\"auto, (max-width: 850px) 100vw, 850px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<ul class=\"wp-block-list\">\n<li><strong>Exposure<\/strong>: People frequently encountered ticks after outdoor activities, especially in wooded or grassy areas<\/li>\n\n\n\n<li><strong>Types of Tick<\/strong>: Most common types of ticks to bite folks were blacklegged ticks, American dog ticks, and lone star ticks, typically of the smaller life stages presumably nymphs<\/li>\n\n\n\n<li><strong>Severity<\/strong>: Notable cases involved serious symptoms, hospitalizations, or chronic conditions such as Lyme disease, Babesiosis or Alpha-Gal Syndrome<\/li>\n\n\n\n<li><strong>Pets<\/strong>: Pets, especially dogs, were a frequent source of exposure, often after outdoor activity<\/li>\n<\/ul>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Behavioral Changes<\/strong>: <strong>Be<\/strong> <a href=\"https:\/\/web.uri.edu\/tickencounter\/ticksmart\/\"><strong>TickSmart<em>!<\/em><\/strong><\/a> <\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<p>After finding a tick folks varied in their responsiveness of behavior changes to prevent future bites. On a scale of 1 to 5, 1 being &#8220;no changes&#8221; , and 5 being &#8220;very cautious&#8221;, we received a variety of answers but the average response was a 3.2. \u00a0<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Vigilance: <\/strong>Many increased vigilance through tick checks and using bug spray&nbsp;&nbsp;<\/li>\n\n\n\n<li><strong>Prevention<\/strong>: Some adopted additional measures like lawn maintenance, pet treatments, or tick removal tools&nbsp;&nbsp;<\/li>\n\n\n\n<li><strong>Variation<\/strong>: A few remained unconcerned or unchanged in behavior; others became more fearful or cautious\u00a0\u00a0<\/li>\n<\/ul>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\"><div class=\"cl-wrapper cl-card-wrapper\"><a class=\"cl-card  \" href=\"https:\/\/web.uri.edu\/tickencounter\/ticksmart\/\" title=\"\"><div class=\"cl-card-container media\"><img decoding=\"async\" src=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/2-girls-jumping-in-woods-copy-Large.jpeg\" srcset=\"\" alt=\"\"><\/div><div class=\"cl-card-container text\"><div class=\"cl-card-text\"><h2>Be TickSmart<\/h2><p>Enjoy the outdoors safely during tick season with these timely tips for you and your family.<\/p><\/div><\/div><div class=\"cl-card-container button\">Learn more<\/div><\/a><\/div><\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Concern About Developing AGS<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\"><div class=\"cl-wrapper cl-card-wrapper\"><a class=\"cl-card  \" href=\"https:\/\/www.twoalphagals.com\/\" title=\"\"><div class=\"cl-card-container media\"><img decoding=\"async\" src=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/in-the-tall-grass-podcast-1.jpg\" srcset=\"\" alt=\"\"><\/div><div class=\"cl-card-container text\"><div class=\"cl-card-text\"><h2>Living with AGS<\/h2><p>Visit the Two Alpha Gals site to learn more about living with AGS and their podcast &#8220;In the Tall Grass&#8221;<\/p><\/div><\/div><div class=\"cl-card-container button\">Learn more<\/div><\/a><\/div><\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<p>When proposed with a hypothetical scenario of &#8220;If you developed AGS, how concerned would you be?&#8221;most respondents expressed concern about developing AGS, with impact varying based on dietary habits and ability to adapt.<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Concern<\/strong>: There was high concern among most respondents due to potential disruption to diet and lifestyle&nbsp;&nbsp;<\/li>\n\n\n\n<li><strong>Adaptation<\/strong>: Some felt they could adapt by switching to alternative proteins like poultry, fish, or plants, but noted possible challenges&nbsp;&nbsp;<\/li>\n\n\n\n<li><strong>Minimal Impact<\/strong>: Minimal concern from vegetarians or pescatarians, though some still wary of health risks&nbsp;or less obvious sources<\/li>\n<\/ul>\n<\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\">Overall Findings and Conclusions<\/h3>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\">\n<p>The survey results reveal a complex picture of tick awareness and Alpha-Gal Syndrome (AGS) understanding in southern New England as our risk of encountering lone star ticks increases.<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Limited Awareness<\/strong>: While tick encounters are common, many individuals\u2014especially students\u2014remain unaware of AGS or underestimate the full range of risks posed by ticks.<\/li>\n\n\n\n<li><strong>Cultural Relevance<\/strong>: The potential for AGS to disrupt diets resonated deeply, particularly in communities where red meat holds cultural or nutritional significance.<\/li>\n\n\n\n<li><strong>Information Access<\/strong>: People rely on a blend of trusted medical sources and informal channels like social media for information, suggesting an opportunity for clearer, more consistent public messaging.<\/li>\n\n\n\n<li><strong>Prevention Gaps<\/strong>: Despite personal or secondhand experiences with tick-borne illnesses, there remains a gap between awareness and consistent prevention behaviors, highlighting a need for targeted education and outreach.<\/li>\n<\/ul>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\"><div class=\"cl-wrapper cl-card-wrapper\"><a class=\"cl-card  \" href=\"https:\/\/web.uri.edu\/tickencounter\/be-ready-for-ticks\/\" title=\"\"><div class=\"cl-card-container media\"><img decoding=\"async\" src=\"https:\/\/web.uri.edu\/tickencounter\/wp-content\/uploads\/sites\/1713\/Warning-Tick-Habitat-Sign_posted-on-kristen-deck_cropped1-1-scaled.jpg\" srcset=\"\" alt=\"\"><\/div><div class=\"cl-card-container text\"><div class=\"cl-card-text\"><h2>#BeReadyForTicks<\/h2><p><strong>JUST IN TIME learning <\/strong>for tick bite protection and tickborne disease prevention education.<\/p><\/div><\/div><div class=\"cl-card-container button\">Learn more<\/div><\/a><\/div><\/div>\n<\/div>\n\n\n\n<p><sup><em>Thank you to Dr. Alexis White, Kristen Pohl-Munro, Dr. Tom Mather, for the help in developing content, webpage design, and mentorship. Additionally thank you to the students in the Spring 2025 AVS\/ENT 390H course who helped administer the surveys, and thank you to the individuals who agreed to be interviewed for this project.  <\/em><\/sup><\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>By Valerie MacDonald (April 2025) Valerie MacDonald, a senior in the Honors Program at the University of Rhode Island, lead a research project in collaboration with Dr. Thomas Mather and his team to explore public awareness of Alpha-Gal Syndrome (AGS) and the growing presence of lone star ticks in southern New England. As part of [&hellip;]<\/p>\n","protected":false},"author":4045,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"tags":[],"class_list":["post-25741","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"_links":{"self":[{"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/posts\/25741","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/users\/4045"}],"replies":[{"embeddable":true,"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/comments?post=25741"}],"version-history":[{"count":4,"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/posts\/25741\/revisions"}],"predecessor-version":[{"id":25790,"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/posts\/25741\/revisions\/25790"}],"wp:attachment":[{"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/media?parent=25741"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/categories?post=25741"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/web.uri.edu\/tickencounter\/wp-json\/wp\/v2\/tags?post=25741"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}